The challenge of not knowing

Raising a disabled child can be challenging, but when you don't have a diagnosis and no idea as to what it might be it makes it even more challenging. My youngest son will be turning 7 this year he started life with the odds stacked against him. Weighing in at only 3lbs 7oz the doctors said he wouldn't survive 48hrs. He surprised them and beat those odds. Over the years we have been told he wouldn't make it another month, or week, or even another day 4 different times. He has proven them all wrong, but it has been apparent that he had some problems. He has been tested for multiple things to date he has been diagnosed with ADHD, autism, and CP. Unfortunately there is still something else going on and we don't know what. For the past 6 months we have watched his legs slowly deteriorate from a clumsy child who can still run, ride a bike, and all the normal stuff to a child who spends half his day in a wheelchair. The doctors have been testing for everything they can think of and so far all the tests have come back normal. They can see that this is happening but have no idea why. He is currently in occupational therapy, speech therapy, and physical therapy, but rather than helping it seems to be making him worse. With out knowing what is causing the problem we don't know if we should continue the therapies or not everything is just a big question and it's seems like no one can find the answer. The only thing I know for sure is that my son Caleb is a fighter and will continue to overcome and surprise us and he will do it all with a smile.